Petition: Fund ketogenic dieticians at Waikato DHB

Epilepsy affects at least 48,000 New Zealanders. Unfortunately, 35% of these people cannot achieve seizure control with conventional medications. Despite the addition of over 15 new anti-epileptic drugs, overall seizure control in newly diagnosed epilepsy patients has not fundamentally changed over the years. Surgery may help some of these people but, for most of them, the medications do not work, and surgery is not an

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Epilepsy Articles – August 2018

EWCT brings you the latest news on epilepsy-related articles Phantosmia is the medical word used by doctors when a person smells something that is not actually there. Phantosmia is also called a phantom smell or an olfactory hallucination. The smells vary from person to person but are usually unpleasant, such as burnt toast, metallic, or chemical smells. Many people with epilepsy experience phantosmia.

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2018 – Annual General Meeting (AGM)

NOTICE OF 2018 ANNUAL GENERAL MEETING Notice is hereby given that the 2018 Annual General Meeting of Epilepsy Waikato Charitable Trust (EWCT) will be held at St Peter’s Cathedral Hall, 51 Victoria Street, Hamilton, on Tuesday, 11 September 2018, commencing at 6.30 pm. AGENDA Welcome by chairperson Apologies Confirmation of minutes of the previous AGM held on 13 September 2017* Matters arising Patron, Hon. Tim

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Ben’s Buddies – Epilepsy story for children (Animated video)

We are proud to announce our children’s book Ben’s Buddies has been turned into an animated video. It’s available to watch in three languages on YouTube below. Many thanks to Myles McInnes for creating the animation from the illustrations by Deborah Hinde, and Ray Harlow for the translation work. Ben’s Buddies – te reo Māori    Ben’s Buddies – English   Ben’s Buddies – Deutsche  

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Epilepsy Articles – July 2018

EWCT brings you the latest news on epilepsy-related articles from around the web: The brain — the central “control unit” of our bodies, repository of memories and emotions. Throughout history, philosophers have believed that the brain may even house that intangible essence that makes us human: the soul. What should we know about our brains. https://www.medicalnewstoday.com/articles/322081.php There has been much talk in the media about

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Sarah’s Story

My name is Sarah Nancy Walker and I have had epilepsy for seven years which is very well-controlled. On the 24th December 2010, a day before Christmas I had my very first seizure roundabout eleven to midnight. Hours before I remember attending the Odeon Cinemas with my family but most of what happened watching the film has been erased from my memory. I don’t really

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Epilepsy Articles – June 2018

EWCT brings you the latest news on epilepsy-related articles The ketogenic diet has numerous health benefits, including fewer seizures for children with epilepsy who do not respond to anti-epileptic medications. However, there has been no clear explanation for exactly how the diet aids children with epilepsy. Researchers now believe they have established a causal link between gut bacteria and seizure susceptibility. The study also identifies

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Parenting Courses – Toolbox Years 9-12

The Hamilton East Community House is advertising a parenting course specifically aimed for parents with children aged 9-12. This course is aimed specifically at parents of children aged 9 to 12 years old. Wednesdays 7:30 – 9:30 pm during 6 weeks starting 1st August until 5th Sept 2018 Hamilton East Community House, 53 wellington street, Hamilton East Costs:$20 per person or $30 per couple If you are

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“Leading the Way” Newsletter – May 2018

Welcome everyone, It is only the fifth month of the year and already we have achieved so much this year. On a trust board level, we have said farewell to our secretary AiEe Teo, who has much travelling to do, as her family is spread between many continents of the world. Both Cyril Markham and Faith Gibbs have stepped aside in their former roles on

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