Our phone chat #23 – Karl

Maria: Hi Karl, I have been chatting with people about their epilepsy stories. I understand that you would like to talk about employment and epilepsy. Have you found that having epilepsy has been a barrier to finding employment? Karl: There is a funny sort of barrier in employment and I think that it has a lot to do with fear. Currently, I work in an

Read More »

Our phone chat #22 – Lorna

Maria: Hello Lorna. I have known you for some time now and, in that time, I have come to learn about your brave and stoic attitude towards facing your many daily challenges. You have multiple disabilities as well as having epilepsy. Lorna: If it wasn’t for my children and my dogs, I don’t know how I would have kept going. I had a serious car

Read More »

Our phone chat #21 – Steve

Maria: Hi Steve, thank you for wanting to share your story. You have had a bit of a rough and rocky road trying to live with epilepsy whilst not being fully supported in the community. I understand that the lack of support has been hard for you. How does your story begin? Steve: Up until 2005 I was leading a busy life. I had my

Read More »

Our phone chat #20 – Charlie

Maria: Hello Charlie, thank you for taking part in my phone chat project. Every person with epilepsy has a special story. How shall we start yours? Charlie: I guess that having epilepsy isn’t just about me. It impacts on my entire family because of the limitations epilepsy puts on my life. I am not allowed to drive a car and so I can’t just pop

Read More »

Our phone chat #19 – Ruth

Maria: Hi Ruth. Thank you for taking part in this ‘phone chat project’. I know that you will be speaking about your son’s epilepsy journey to date. It has been quite a journey and I know that there have been quite a few knock-backs from when I first met Oscar in 2016. Ruth: Oscar has always tried to be positive about this epilepsy, but he

Read More »

Our phone chat #18 – Lisa

Maria: Hi Lisa, thank you for having a ‘phone chat’ with me. There is nothing better than being able to tell a story over the phone because you never know where it is going to lead. That is the beauty of using this method of story-telling. Today we are going to talk about why your son, who lives with epilepsy, left New Zealand for Australia.

Read More »

Our phone chat #17 – Steph

Maria: Hi Steph. I know that you have been itching to tell me your story. Steph: I am because I am trying to process what is happening to me with regards to my seizures and anxiety levels. Maria: In a previous conversation you mentioned that there was an ‘old you’ and a ‘new you’. I am interested in knowing more about that. Steph: In my

Read More »

Our phone chat #16 – Tania

Maria: Hi Tania, thank you for sharing your epilepsy story with me today. Tania: That is okay. I don’t often speak about my epilepsy because I just accept the way things are now. My first seizure happened when I was 16 years old, straight after I had a haircut, in fact. My parents clicked that something was wrong with me and I felt upset that

Read More »

Our phone chat #15 – Sally

Maria: Hello Sally. It is always lovely to hear from you. How are you? Sally: Well, you know, I have my bad days and my good days. Today I am feeling a bit frustrated with myself. I used to be an intelligent person once upon a time but I think that my memory isn’t quite what it used to be. What with all the seizures

Read More »

Our phone chat #14 – Mary

Maria: Hello Mary. Thank you for sharing Jake’s story with me. It has been quite a journey for you all since Jake developed epilepsy as a 12-year-old. Mary: Jacob (Jake) was born in June 1988. He was a gorgeous, healthy and a contented baby and one of five boys growing up on the outskirts of Hamilton, New Zealand. Jake was a typical kiwi kid. He

Read More »